Save 10% and Donate 10% For a Cure

Cystic Fibrosis Awareness Month: help find a cure! Rose of Sharon Jewelry donates 10% to the CF Foundation, you get 10% savings! cfmonth We love to share and what better way than to share our jewelry with you at a 10% savings plus share with the Cystic Fibrosis Foundation. During May, Rose of Sharon Jewelry will make a 10% donation to the Cystic Fibrosis Foundation in your name when you buy any our our one-of-a-kind handmade jewelry from our store. You’ll find your 10% sale price listed on the main Rose of Sharon Jewelry web site by each piece of jewelry. At the end of the month, we’ll send each donation to the Cystic Fibrosis Foundation and we’ll send you a thank you card! Learn more about Living with CF

Living with CF

My 29-year-old niece, Sarah (who is our youngest artisan in Rose of Sharon Jewelry) was diagnosed with cystic fibrosis as a toddler. It took a while before doctors discovered she had CF instead of bronchitis or another lung disorder. It was a huge emotional blow to our entire family, but Sarah lead us through with her adorable smile and sunny disposition. (Well at least until she  turned into a “normal” teen. LOL) Her journey has been filled with breathing treatments, inhaling medications, lots of pills, extra salt in her diet and several hospitalizations. Like everything else she does, she faces her illness with  lots of laughter and great wit. When Sarah was first diagnosed, most CF patients never made it out of their teens. Now many have productive and loving lives  well into their 40s. In the past 25+ years, a genetic screening test was discovered, the specific defective gene has been studied, potential cures such as gene replacement and enhanced drug protocols have gone into extended clinical trials. Hospitalizations and treatments can run into the hundreds of thousands of dollars annually. One inhalable drug alone costs up to $900 a month. Fortunately, Sarah has Kaiser health care coverage who have pediatric specialists with extensive CF experience. But that isn’t the case for every one’s child.
Researchers believe strongly that a cure is eminent so our efforts to raise money are at a critical point.
Cystic Fibrosis facts:
  • 1,000 children are diagnosis each year
  • More than 45% live beyond age 18 (in the 50’s it was rare for a child to live beyond 6 or 7.)
  • Predicted rate of survival now is 37 years
  • More than 10 million Americans carry the CF gene without any symptoms
When 2 CF gene carriers have a child, there is
  • a 25% chance the child will have CF
  • a 50% chance that the child will carry the CF gene but will not have the disease
  • a 25% chance of not carrying the gene and not having CF

pixel Save 10% and Donate 10% For a Cure